Cavernoma Alliance UK
Registered Charity Number: 1114145
About the Charity
Cavernoma Alliance UK supports people living with cavernoma, a neurological condition causing haemorrhages, seizures and neurological deficits.
What our donation will help fund
We’ll be using this donation to help keep our support services running, including our helpline, buddying, online chats and in-person meet-ups. This peer-led support provides important practical and emotional support for people living with cavernoma and their supporters. As a small charity with an income of under £100k donations like this of £1,000 make all the difference to our ability to keep running. We’re enormously grateful and wish to extend our heartfelt thanks to all our supporters who voted for us.
“It can be incredibly lonely living with a rare neurological condition that most people haven’t heard of. We don’t want anyone facing that journey on their own and run support services across the UK connecting people with lived experience of cavernoma. We’re enormously grateful for this £1,000 grant which will help to keep these services running. A huge thank you to everyone who voted for us.”
Helen Evans, Charity Manager, Cavernoma Alliance UK
